8th October 2018
JUST STARTED COUGH-ASSIST twice daily thanks to wonderful #NHS. Kit is surprisingly hi-tech/pricy. Takes over my lungs (capacity now only 56%). Forces high pressure IN to fully inflate then literally sucks the wind OUT of me. Three times. Then repeat. Clears any phlegm. Amazing! And should be EQUALLY available to everyone!!
14th October 2018
AND THERE I WAS THINKING ALL OUR SUPERHEROES WERE IN THE NHS… nhs.uk
25th October 2018
I’M AT PINEWOOD STUDIOS, home of the 007 Stage and Superman, scanning my face so when I’m Locked-In an avatar can move instead of me. Never been done before for someone with #MND. Soon the technology will be available and AFFORDABLE for all of us – but no one had suggested we might be interested! Same technicians work on Star Wars. Showing me around. Letting me play with their toys. This is the ACTUAL helmet worn by Darth Vader in Episode V: THE EMPIRE STRIKES BACK for heaven’s sake!!! Earlier, I drove down Goldfinger Avenue where Bond wrecked his Aston Martin DB5. Teenage Peter is in his element. Life doesn’t get much better than this…
29th October 2018
THREE-DAY-OLD GREAT NEPHEW LOGAN visits for the first time, proving that one good thing about #MND is that even though my arms have pretty well given up doing what I tell them, someone ELSE can still position them to make a VERY comfortable cradle!! And I can FEEL perfectly…