November

3rd November 2018

SOMETIMES SCIENCE MUST OVERRULE POLITICIANS – as in this case. SRTI is a way to fast-track benefits but requires a “reasonable expectation of death within 6 months”. #MND isn’t that predictable. Like Scotland, MPs should #Scrap6Months for MND. See more on https://www.mndassociation.org/…/campaign…/scrap-six-months/

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8th November 2018

AFTER 35 YEARS GIVING SPEECHES, yesterday I gave my last one ever – using a gently-breathless 50%-lung-capacity voice. How do I feel about this End of an Era? BRILLIANT! I’m not going to stop giving speeches, I should hasten to point out. But from now on I can get away with pre-programming my talks into a Speech Synthesiser. Never again will I have to memorise a 40-minute speech without even the prompt of slides (as I had to do yesterday because I couldn’t even grip cue cards let alone work PowerPoint). In future, I won’t have to remember a word; all I’ll ever have to remember is to press the Start button. How utterly cool is that?!?

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26th November 2018

WONDERFULLY ENERGIZING MEETING WITH SUPERB Sally Light, CEO of the MND Association, while I was up in Birmingham for the quarterly Board meeting. I’ve worked with many CEOs, but never before one so open and enthusiastic about new ideas! Let alone MY ideas!! I left really excited by the future of #MND and the Association’s influence in shaping that future. Now I’m off for a couple of weeks’ vacation in Madeira and the Canary Islands – if only to explore whether the concept of wheelchair-friendliness has yet reached them!

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