December

3rd December 2018

AS A VAN IN MADEIRA ALMOST REAR-ENDED ME – no doubt frustrated that cripples in wheelchairs were allowed on pedestrianised roads – I gave thanks to my heroes at Permobil and Permobil UK for supercharging my F5. Feeling the Need For Speed, I celebrated Disabilities Day by shooting away like an #MND bat out of hell leaving the confused local driver eating my dust. The poor man must have been hampered by pedestrians because he never again caught up… I so LOVE Technology!

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22nd December 2018

SPENT TWO HOURS WITH MY EXCELLENT MP Kevin Foster. I was frankly very impressed. He was REALLY well-prepared. Toward the end, he enthusiastically agreed (on camera) to help me fight – and KEEP fighting – in Parliament till we end the existing postcode-lottery on access to Cough Assist and Tracheostomy for #plwMND. As my MP, he is my ONLY route to the Health Minister and to building support in Government to give EVERYONE with #MNDthe same support, the same options, and (for those of us that choose it) the same RIGHT TO LIVE. I sense Kevin has the deep desire to make a difference needed to be a Champion – and the backbone needed to be a Terrier when we hit lack-of-time and push-back! Watch this space…