6th August 2018

REALLY EXCITING NEWS! A major TV broadcaster has commissioned a primetime documentary of my search for Hi-Tech to help #plwMND THRIVE when we’re Locked In! It’s being shot by award-winning Sugar Films ( They’re now signing up companies to help, so PLEASE watch my video explanation on and then pass it to any SERIOUS contenders – or people who might be able to get us INTO the MOST serious contenders. We need the BEST!!! And I guess it goes without saying, if anyone happens to be friends of friends with the likes of Elon Musk, now would be an incredibly good time to get in touch…


10th August 2018

People ask why I want an exoskeleton to move MY arm when it’s paralysed by #MND – rather than use a purely robotic arm that moves independently of me. THIS IS WHY! I want to still touch people I love, feel another human being, have them shake my hand. A robot could manipulate better. But ALREADY I miss physical contact!!


15th August 2018

MEET THE CORE OF C.H.A.R.L.I.E. (my research Cyborg Harness And Robotic Locked-In Exoskeleton) – the brilliantly engineered Permobil F5 Corpus VS. Already, as a top-end wheelchair, it stands, lies flat, rises, goes fast. But with all the serious robotic hi-tech I plan to augment it with, this particular bit of kit will boldly go where no wheelchair has gone before!


28th August 2018

BEING DIAGNOSED WITH ‘TERMINAL’ #MND can be a bit traumatic. Well, it would be wouldn’t it? After all, you’re told you’re likely to die. Or worse, you might LIVE – and be Locked-In. But my diagnosis was NOT actually such a bad day after all. If you want to know why, here’s the lowdown