Message from Peter

A MESSAGE FROM PETER

Some with MND in the UK who claim the RIGHT TO THRIVE are being told they must die instead, simply because of where they live! This will not stand. Please read this page to see how we can confront this cruel postcode lottery once and for all.

At its core, the RIGHT TO THRIVE is about fair access, genuine choice, and healthcare equality. So, whether or not you have any personal experience in MND, if you simply believe in Fairness and you have a British MP then please send an email/letter using the template you’ll find at the bottom of the page.

Why do I feel so passionate about this? Simple. Statistically, I’ll be dead by the end of this year. Except, I won’t be. Instead, my outstanding NHS team will give me a life-preserving tracheostomy this Autumn. So, I’ll be fine. But I’ve discovered that others with MND who WANT to follow a similar path to me are being dissuaded or blocked – and I for one refuse to leave them behind.

I know we’re all busy with other priorities. But those being denied the RIGHT TO THRIVE feel powerless and vulnerable and The System is skewed heavily against them. It’s a burning injustice and they need more than just our moral support. They need us to PUSH BACK against the status-quo. They need us to change everything from Government (NICE) Guidelines to local (CCG) funding.

To do that, we need to MAKE A NOISE that rises above the clamour of Business As Usual, the warnings Don’t Open A Can Of Worms, and Brexit. For far too long, the voice of MND has been largely unheard. WE can change that. As individuals, any of us can easily be silenced; TOGETHER we now need to ROAR!!!

For answers on FAQ’s and a draft letter on RIGHT TO THRIVE for you to copy and send to your local MP, then please follow the links below.

FAQ’s about RIGHT TO THRIVE

Letter about RIGHT TO THRIVE for you to send to your local MP